tag:blogger.com,1999:blog-6079009445260060345.post1097914720702935011..comments2023-09-20T07:49:33.399-07:00Comments on A Day in the Life of The Tube Fed Wife: A Fork In The Road. Again. -- Health UpdateChanel Whitehttp://www.blogger.com/profile/12151262536426256191noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-6079009445260060345.post-23007653779301583072016-07-20T21:06:08.692-07:002016-07-20T21:06:08.692-07:00I had disc degeneration in my cervical spine (I st...I had disc degeneration in my cervical spine (I still have it in my lumbar spine) along with a lack of curvature in the cervical spine. This sounds similar to what you described. After some time I began experiencing a lot of pain an numbness in my arms and hands. After some treatments with a sports medicine Dr I did see a little improvement. After a neurosurgeon did his thing I've seen a much bigger change. So, it is possible that the disc issues are at least contributing to the numbness and tingling (in arms or hands at least). If so there may be options to reduce those symptoms. :/. Incidentally the medicine I was given for the nerve pain in my extremities has helped my fibromyalgia too. <br /><br />Flares seem to be a trend lately. :(. I hope yours eases soon. Anonymoushttps://www.blogger.com/profile/13650595321322869450noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-19925548579876480132016-07-07T11:32:22.249-07:002016-07-07T11:32:22.249-07:00After I struggled to read your post in the font in...After I struggled to read your post in the font in which it displays, I clicked on "e-mail to a friend" and learned that the copy of the article displayed was in larger and darker print. I then decided to post a comment about this issue and the icon that usually displays to allow me to increase the font suddenly appeared, which it did not in the original post. I thought you would want to know this and perhaps include directions in your future posts for people who have trouble seeing to click on 'send mail' or 'post comment' in order increase the size of the font. I hope this is understandable!MozzGoggshttps://www.blogger.com/profile/11826497202937148891noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-81985368550434651772016-07-07T11:32:11.673-07:002016-07-07T11:32:11.673-07:00After I struggled to read your post in the font in...After I struggled to read your post in the font in which it displays, I clicked on "e-mail to a friend" and learned that the copy of the article displayed was in larger and darker print. I then decided to post a comment about this issue and the icon that usually displays to allow me to increase the font suddenly appeared, which it did not in the original post. I thought you would want to know this and perhaps include directions in your future posts for people who have trouble seeing to click on 'send mail' or 'post comment' in order increase the size of the font. I hope this is understandable!MozzGoggshttps://www.blogger.com/profile/11826497202937148891noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-69901283566033343382016-07-03T14:00:05.708-07:002016-07-03T14:00:05.708-07:00Currently I'm suffering from a severe Fibromya...Currently I'm suffering from a severe Fibromyalgia flair and have been pretty depressed. Just want to check in and make sure you are okay health wise mentally. Being chronic is awful and I'm praying that your Dr comes up with a great treatment plan. jawttgirlhttps://www.blogger.com/profile/17936129407423528476noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-54773429419054459352016-07-03T13:59:56.562-07:002016-07-03T13:59:56.562-07:00Currently I'm suffering from a severe Fibromya...Currently I'm suffering from a severe Fibromyalgia flair and have been pretty depressed. Just want to check in and make sure you are okay health wise mentally. Being chronic is awful and I'm praying that your Dr comes up with a great treatment plan. jawttgirlhttps://www.blogger.com/profile/17936129407423528476noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-16344384307754653342016-06-30T22:35:29.928-07:002016-06-30T22:35:29.928-07:00I do not suffer from a serious illness, but my lif...I do not suffer from a serious illness, but my life has seen its share of trial and difficulty. You make me want to lean more on the Lord, to seek HIS peace, instead of trying in vain to run my own show. As a sister in Christ, I thank you from the depths of my heart! 😍ohsohappyhttps://www.blogger.com/profile/07835611011707279254noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-25110282341124568252016-06-29T18:09:11.266-07:002016-06-29T18:09:11.266-07:00Always in my prayers daily...ALWAYS!!!Always in my prayers daily...ALWAYS!!!Diane Cummimgshttps://www.blogger.com/profile/02861302131664815791noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-35291229487946779232016-06-25T22:23:31.550-07:002016-06-25T22:23:31.550-07:00Aw! This made me smile so big! Thank you :) It was...Aw! This made me smile so big! Thank you :) It was EXACTLY what I needed to make my day brighter! Hugs.Chanel Whitehttps://www.blogger.com/profile/12151262536426256191noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-21706593171215078232016-06-25T22:22:41.353-07:002016-06-25T22:22:41.353-07:00Hi Rachel,
Yes I have been on Cellcept twice and f...Hi Rachel,<br />Yes I have been on Cellcept twice and failed treatment. It did not help halt progression of my scleroderma. I have heard that a few physicians are now saying it is as strong as cytoxan which surprises me! I am so glad patients are seeing such wonderful results without the horrible side effects of high dose chemo. Keep me updated on your Seattle SCT visit! I would love to hear about how it goes. Hugs.Chanel Whitehttps://www.blogger.com/profile/12151262536426256191noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-10407726274509180122016-06-25T13:31:05.662-07:002016-06-25T13:31:05.662-07:00As a reader and "cyber mother" to you in...As a reader and "cyber mother" to you in my heart, what do you need to make your day a bit brighter? Encouragement I can give but seems so "typical"...but I really respect your honesty about the crap you face. It sucks. You are making a mark though-giving readers who suffer or know someone that is, with a pain in the butt condition, knowing we/they are not alone. You are not alone. I'm a Christian-I will pray for you (really lol). Don't worry, i won't give a sermon 😜 Hang in there. Stand4Truthhttps://www.blogger.com/profile/09112310697579336765noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-58530722175596095462016-06-25T05:15:13.916-07:002016-06-25T05:15:13.916-07:00I have systemic sclerosis as well but I am being t...I have systemic sclerosis as well but I am being treated with Cellcept (an immunosuppressant) and was told that this treatment is just as effective as Cytoxan only without all the nasty side effects. Have you heard of this? I am also heading to Seattle on the first for a Stem Cell Transplant consultation so we'll see how that goes. Anyway, thanks for sharing, you inspire me to keep fighting for my life with this horrible disease!Anonymoushttps://www.blogger.com/profile/02072109195856922487noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-8961783172849479422016-06-25T01:29:08.115-07:002016-06-25T01:29:08.115-07:00can you drink supplements and vitamins? are you al...can you drink supplements and vitamins? are you allowed to? Prayers! thank yoi for your blog. My daughter's case makes me so worried tube fed and no reason for it. But your blog inspired me to be strong for her! thank you and prayers to you my daugther and everyone braving in sickness!Meryl Stryfehttps://www.blogger.com/profile/16577207170827089940noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-65335084659622657242016-06-25T01:07:13.131-07:002016-06-25T01:07:13.131-07:00Continued prayers. The hospital and Dr's shoul...Continued prayers. The hospital and Dr's should definitely take responsibility for what happened. I hope it all works out in your favor. You are so strong amist your illness, keep on fighting! Thank you for sharing your story. Anonymoushttps://www.blogger.com/profile/12292757527954769443noreply@blogger.com