tag:blogger.com,1999:blog-6079009445260060345.post316196083875199774..comments2023-09-20T07:49:33.399-07:00Comments on A Day in the Life of The Tube Fed Wife: Illness Should Come With A DisclaimerChanel Whitehttp://www.blogger.com/profile/12151262536426256191noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6079009445260060345.post-35614482393513295032019-03-15T06:58:41.414-07:002019-03-15T06:58:41.414-07:00A dear friend of mine was diagnosed with Interstit...A dear friend of mine was diagnosed with Interstitial Lung Disease and now depends on oxygen 24/7. It seems like such a coincidence because my husband was diagnosed with Pulmonary Fibrosis over 2 years ago. I'm organizing a fund raiser for my friend to help cover medical expenses. Was wonder if anyone has suggestions or success stories with planning a fundraiser?Anonymoushttps://www.blogger.com/profile/05705372119011635209noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-40341317526262216262017-01-07T09:37:10.952-08:002017-01-07T09:37:10.952-08:00I am 74 years old. Two years ago I noticed that I ...I am 74 years old. Two years ago I noticed that I was finding it harder to walk in the hills, after 3 months my condition suddenly worsened, following an xray and a MRI scan I was diagnosed with Idiopatic Pulmonary Fibrosis (IPF). I start taking a corticosteroid and Pirfenidone, even with these medications i still remain very breathless when climbing the 15 steps to our front door, i wake up at night coughing persistently and hacking for hours. In July 2016, my neighbour Nicholas Quale referred me to NewLife Herbal Clinic, he had initially purchased Lymphoma herbs from them. I purchased their Pulmonary fibrosis herbal remedy and immediately commenced usage, i use the remedy for about 9 weeks and my condition greatly improved for good, all symptoms including breathlessness, tiredness, shortness of breath, coughing etc are gone, i did another scan, the result was unbelievable, my lungs are repaired, visit www.newlifeherbalclinic.weebly.com or email newlifeherbalclinic@gmail.com Jamie Swintonhttps://www.blogger.com/profile/10061532156773459723noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-79454513585876876812016-04-30T09:12:48.041-07:002016-04-30T09:12:48.041-07:00Jennifer my best friend is in stage 3 of kidney fa...Jennifer my best friend is in stage 3 of kidney failure and is type 1 diabetic. It's hard to sit and watch her in and out of the hospital. The month of December she had 5 hospital stays for average 3-4 days. She was in the hospital more then she was home. I try my hardest to help her cause she also has a two year old daughter she has to support. She knows she can come to us for anything. I sometimes think we are there for her more then her own family. I borrow her money but never ask for it back. I help with the baby. Currently helping her get a divorce from her abusive husband. <br /><br />I commend you two ladies. I suffer from an array of mental health issues and degenerative disc disease and already had two back surgery before I was 25. Currently waiting for my insurance to approve an mri for imagines from my neck to my hips. All three were denied so I have to jump thru their hoops (i.e. PT and crap) in order to make sure things have not progressed. I have had epideral injections and RFA treatments and now nothing is working. I take nerve meds, pain pills, muscle relaxers, anti-inflammatory meds, recently put on Prilosec to coat my stomach to protect it and my esophagus, anti depressants, anti anxiety, and probably many more I have missed. I'll take my illness over any thing you two are dealing with. Some days it's hard to get out of bed but I am an ambitious woman like the two of you. I go to school for social work, I'm a supervisor for a behavioral health group home, I waitress part time because I love interacting with ppl and having my regular customers, I have been with my "not husband" (lol, we aren't legally married but I call him my "not husband") for 12 years, and we have two beautiful girls together. <br /><br />When there is no other options then to continue to fight and push through everyday, that's all you can do. I commend you Chanel and all you do, getting up everyday and fighting your fight, and reaching out and sharing your story. Thank you and I look forward to following your story!!! Sending my love and best wishes to you and your family, as well as all your followers. Godspeed! Mommies little angelshttps://www.blogger.com/profile/05692726575360854473noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-87504398307882004552016-04-24T12:57:59.228-07:002016-04-24T12:57:59.228-07:00I just realized that I left off the condition that...I just realized that I left off the condition that will probably take me out eventually - kidney failure! They've been failing for the last 6 years or so, though I'm only in Stage 3. Stage 5 is when you need dialysis, and I desperately hope I never get there!J.BuginPinkhttps://www.blogger.com/profile/10080568978588419949noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-48691203262657933152016-04-24T12:54:08.818-07:002016-04-24T12:54:08.818-07:00As someone who also has a laundry list of conditio...As someone who also has a laundry list of conditions, I can so relate!! You have a beautiful and important blog. Makes me want to start one even more. I'm 57, and am currently dealing with rheumatoid arthritis, osteoarthritis, Sjogren's Syndrome, fibromyalgia, degenerative disk disease with two herniated disks, chronic migraines, chronic major depression (but doing well on meds I've taken for it for more than 25 years), and Common Variable Immunodeficiency (which means I make no immunoglobulins & can't fight infection without the weekly subcutaneous immunoglobulin G that I give myself). I'm past menopause now, but when I was younger, I also had to deal with Polycystic Ovarian Syndrome. Nothing as serious as you have to deal with (!), and I wish you the very, very best in your journey! Many hugs, young one. I wish you didn't have to deal with all this. J.BuginPinkhttps://www.blogger.com/profile/10080568978588419949noreply@blogger.com