tag:blogger.com,1999:blog-6079009445260060345.post8417545022181337141..comments2023-09-20T07:49:33.399-07:00Comments on A Day in the Life of The Tube Fed Wife: Small Victories Realistically Celebrated - Health UpdateChanel Whitehttp://www.blogger.com/profile/12151262536426256191noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6079009445260060345.post-57060437874271476412016-02-08T21:35:40.689-08:002016-02-08T21:35:40.689-08:00Oh man girl... Ulcers are THE WORST! I am so sorry...Oh man girl... Ulcers are THE WORST! I am so sorry it didn't heal! I am glad to hear your off the antibiotics and on the mend from surgery. I am also ecstatic to hear Rituxan made such a difference for you. It is a wonderful drug! I was on it for two years and it helped my joint pain a lot! I'll keep my fingers crossed that it helps the kidneys! I also have lupus but it has yet to effect the kidneys thank goodness. Thank you for the well wishes! I always love talking to other sclero-patients :) Love your blog! You are such an awesome fighter!Chanel Whitehttps://www.blogger.com/profile/12151262536426256191noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-12154505099960706552016-02-08T05:01:12.626-08:002016-02-08T05:01:12.626-08:00So glad to hear you have less pills to take and le...So glad to hear you have less pills to take and less docs to see. I finally finished a six week round of antibitotics for a non-healing ulcer that had to be surgically removed and it feels so good to not have to take those meds along with all the others (I have sclero, lupus, and hypothyroidism) I'm finally back to my normal 10 pills a day and it's so much easier! I had to take those antibitoics three times a day and there were 3 of them! Made my stomach do flips each time. I really hope they cytoxan works for you! I did two rounds of rituxan in sept and oct of last year and I feel like a brand new person ever since. I dont have PAH like you, but I did have lupus nephritis affecting my kidneys pretty bad so we're hoping the rituxan did it's job. I go in for a 6 month follow up on thursday and am hoping for the best. I COMPLETELY understand how you feel about the "no commitments" thing. I was finally able to get back into the classroom this OCT part time teaching creative writing classes and I still fear not being able to feel good enough to get out of bed 4 days a week. But so far Ive only missed TWO DAYS for not feeling well, so I'm proud of myself for that. <br />you'll do fine! and people are usually more forgiving than we think, so if you have to miss in order to take care of yourself, all will be alright. Stay strong! and feel free to check out my blog on all of this too! http://chronicbrevity.blogspot.com/ Anonymoushttps://www.blogger.com/profile/12964980763287416371noreply@blogger.comtag:blogger.com,1999:blog-6079009445260060345.post-2964535139304738822016-02-07T02:02:27.500-08:002016-02-07T02:02:27.500-08:00Hi Chanel,
I am so thrilled that you are feeling ...Hi Chanel,<br /><br />I am so thrilled that you are feeling better, seeing improvements, and getting on with life! It sounds like you are pretty busy in fact. Thank you for taking the time to update us on your progress! Congratulations😃!<br />Reading about how you felt terrified about going to work sick and exhausted, echoed the fears and feelings I had prior to "officially" ending my career. It is nice to know I was not alone in feeling that way. Starting this week I will be on a schedule for few hours twice a week. I have a little anxiety as well, probably because I am afraid I might ignore my body when it tells me to stop and rest, for the sake of keeping to the schedule. Anyway, one day, one minute at a time, right?<br /><br />Take care!Juliehttps://www.blogger.com/profile/03893588808610428166noreply@blogger.com