Hello Friends, Family, and Guests!
My name is Chanel White and I am 25 years old. I started this website to keep my family and friends updated in my rigorous treatment for severe Mixed Connective Tissue Disease. I have found that nothing is more powerful than putting your thoughts into words. It has been both an incredible decompression for me emotionally, and a wonderful opportunity to educate those seeking a realistic glimpse into the life of someone suffering a serious illness. I was diagnosed with MCTD in 2011, and recently underwent a life saving Stem Cell Transplant in January of 2017. The two month process took place in Chicago - the only hospital in the country who would treat my rare illness.
MCTD is a rare autoimmune, connective tissue disease with clinical features of three distinct diseases, while having a very specific antibody called an U1-RNP. The three destinct disease include: These disease wreak havoc through all systems of your body including, but not limited to: muscular, vascular, nervous, circulatory, integumentary, digestive, and respiratory. In most cases these diseases cause decreased mobility, diffused organ failure, and eventually death.
These disease are what you call "Invisible Illnesses" because for the most part, they are unseen. To the typical bystander I look like your average young woman; however, my body tells a much different story. Though I don't look sick, I am actually fighting for my life every minute of everyday. These disease have no cure, only experimental treatments to help the patient with discomfort, mask symptoms, and hopefully prolong life expediencies. Thank you for taking the time to read about my journey.