To my surprise people were actually interested in my journey with this horrendous disease! Within a matter of months I was receiving incredible opportunities to speak at patient education conferences, write for major media outlets, work with influential organizations in the Scleroderma community, and teach seminars for medical professionals. I couldn't believe that by simply sharing my story I was actually making a difference in the community I set out to assist!
This blog has been such a blessing in my life, it has provided me an emotional outlet, connection with other patients, incredible opportunities to expand my advocacy, a platform for awareness, and most importantly the ability to help patients like me feel less alone in their battle.
Thank you to my many readers for your beautiful support through emails, comments, and the sharing of my posts. You all have made this blog a driving factor for Scleroderma awareness.
|Image via The Scleroderma Research Foundation|
One of my most recent endeavors has been working with The Scleroderma Research Foundation on their 2016 Spring Research Challenge. My story was shared alongside famous faces such as Bob Saget, who lost his sister to Scleroderma in the 90s. Their efforts in research funding has lead to incredible advancements in the treatment of patients like me. To learn more about their spring research challenge, or to donate to the cause, click here!