I am officially down to 8mg of Prednisone. The first week was absolute hell. Absolute HELL -- but my body is finally beginning to adjust. Hallelujah! At one point the pain was just too much and I had to go back up, but I am proud to say I fought through it and made the decrease! I feel my breathing has gotten easier, and that my digestive track is working a bit better as well. (I had a milkshake and just about died of excitement!) I go in for a big "half way mark" appointment the middle of March for some tests that will lay out exactly how much the Cytoxan is really helping internal organ wise. I cannot wait to see those results!
I have had a few doctors appointments as well, mostly Physical Therapy which I am really beginning to enjoy, and an Allergist appointment. I can already tell I am regaining some core strength as my lower back is no longer in constant pain. My arms and legs are also a lot more reliable than they were before we started! lol The allergist ran a few blood panels to decipher why I have been plagued with odd rashes, and near constant hives the past few years. Unfortunately the panels all came back in-conclusive, so I will be seeing him again in March to follow up. He did however start me on a basic allergy med to help the itching, and it's been wonderful!
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Hugs,
Chanel
Thanks for sharing your story. You have a ton of positive energy and I hope that you will continue to get stronger and win this fight.
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ReplyDeleteOh my goodness Kyra, thank you so much! Your words brought a huge smile to my face. Hugs!
DeleteI just finished my five months with Cytoxan. I am now in remission for my Relapsing Polycondritis and Lupus. I am so happy for you! I cannot wait to see what your hair looks like! Keep doing good!
ReplyDeleteMaggie that is SUCH wonderful news! Congratulations and HUGE hugs!
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